In collaboration with Middlesex University and in line with our objective of promoting greater understanding of mental health and challenging the discrimination and stigma associated with mental ill health, we are participating in a user-led research project funded by the UK National Institute of Health Research (NIHR) School for Social Care Research (SSCR) that is investigating the experiences of violence, hostility, hate crime, neglect, or other forms of abuse against people experiencing mental health difficulties in order to inform adult safeguarding practice in England.
In specific, on 7 December 2016, @MHChat held a chat to gather participants’ views about their experiences of targetted violence or other forms of aggression or discrimination as a consequence of experiencing mental health difficulties and we are grateful for your wide participation. This is the second chat relating to the same topic that will be held on Wednesday, 7 June 2017 (8:00 PM BST (British Summer Time), 3:00 PM EDT (Eastern Daylight Time), 12:00 noon PDT (Pacific Daylight Time) which will focus on: “Responding to service user experiences of mental health related hate crime, neglect, violence or abuse”. This chat will highlight the experiences of targeted violence, hostility, neglect or other forms of abuse against people experiencing mental health difficulties that have been reported in the research project interviews, and ask what should be done about the situation.
The results of this research will be published later this year or early next year and will help inform and guide adult safeguarding services including the NHS (National Health Service) in the UK; however, we will anonymise your data to protect your privacy. This is a great opportunity to share and express your views on how adult safeguarding and other agencies, individuals or organisations need to respond to neglect, abuse, violence and hostility due to a person’s mental health status and @MHChat we will do our best to include as many stories, ideas, experiences and tweets as possible and highlight your voice and views in this research. However, please note the following:
- @MHChat are led and guided by people with lived experience of mental health challenges.
- The main objective of this user-led research project is to understand and raise awareness of the various experiences of violence and hostility against people experiencing mental health difficulties. This can help improve organisations’ and professionals’ understanding of the challenges faced by people experiencing mental ill health. We are particularly interested in personalising adult safeguarding and to help professionals and organisations better safeguard people experiencing mental health difficulties.
- To ensure respect for @MHChat participants’ and community members’ privacy, any tweets used from this chat or related to this chat (scheduled on 7 June 2017) will be anonymized so they are not retraceable to the original person;
- If we decide to use any direct quotes from any participants, @MHChat will contact that specific participant, through their Twitter account, to ask their permission and consent before using any direct quotes from them.
- Only tweets between 5 and 14 June 2017 and relating to the above chat and addressed to @MHChat or containing the hashtag #MHChat will be collected for this project. All other tweets will NOT be included in this project.
- If you prefer your tweets not to be included or considered for this project, please let us know via one of the following:
- Tweet @MHChat stating that you do not wish your tweets to be included in this research project;
- DM @MHChat stating that you do not wish to your tweets to be included in this research project;
- Email @MHChat at info at mhchat.com stating that you do not wish your tweets to be included in this research project;
- Please note that except for the above period no other tweets @MHChat are not used for this project.
- This is an important opportunity to raise greater awareness of experiences of violence and hostility toward people who experience mental ill health and therefore, @MHChat is participating and supporting this research. However, if you would like to take part in the chat but don’t want your views to be included in this research just let us know as stated above and we will not include any of your tweets in this research.
This user-led research project has received ethical approval from the ethics board of the Middlesex University and seeks to address an important gap in research and practice knowledge relating to ‘disability hate crime’, targeted violence and hostility against people experiencing mental health difficulties and adult safeguarding.
The Care Act 2014 ‘Making Safeguarding Personal’ reforms in the U.K. explicitly state that “safeguarding is everybody’s business”. This study seeks to understand how adult mental health service user experiences can inform personalising ad improving safeguarding and the practice focus on resilience and prevention.
We want your help to make recommendations for adult safeguarding and how systems such as mental health services, the police and housing can respond better to people experiencing mental health difficulties.
If you have any questions regarding the social media use in this project or about @MHChat participation in this project or any question regarding the chat or other relevant information please contact Claudia Megele (Social Media and Digital Research and Ethics Lead for this project) at firstname.lastname@example.org
Look forward to your views and experiences @MHChat discussing “Responding to service user experiences of mental health related hate crime, neglect, violence or abuse”; Wednesday, 7 June 8:00 PM BST / 3:00 PM EDT / 12:00 Noon PDT @MHChat #MHChat.
Below are more detailed information about this user-led research:
This user-led study will explore the following questions:
- Mental health service user concepts and experiences of mental health-related targeted violence and hostility, risk, prevention and protection
- Where mental health service users go to get support if they are frightened of or have been victims of targeted violence and hostility because of their mental health difficulties;
- Responses of adult safeguarding agencies, mental health services and other organisations to mental health-related targeted violence and hostility against people with mental health problems
The first research aim is to explore mental health service user perspectives and concepts of abuse relating to targeted violence and hostility on the grounds of their mental health problem, and to examine how mental health service users approach protection and prevention.
The second aim is to begin to explore aspects of help-seeking, resilience, protection and prevention with people with mental health problems to provide a basis for taking forward investigations into how agencies involved in adult safeguarding could potentially address mental health related targeted violence and hostility against people mental health problems
This user-led research project is funded by National Institute for Health Research (NIHR) and is led by the following researchers:
|Dr. Sarah Carr||Associate Professor Mental Health & (Principal Investigator for this project)||Middlesex University|
|Dr. Trish Hafford-Letchfield||Professor Social Care & (Co-Investigator for this project)||Middlesex University|
|Claudia Megele||Head of Quality Assurance Wiltshire Council and (Senior Researcher and Digital Research Lead & Co-Investigator for this project)||Wiltshire Council|
|Alison Faulkner||Advocate & Independent Researcher & (Co-Investigator for this project)||Network for Mental Health|
This is a user-led and co-produced study conducted with mental health service user and survivor researchers working with researchers from social work and mental health practice backgrounds.
A scoping review of the relevant literature has been undertaken to investigate what is already known about mental health service user experiences of targeted violence and hostility on the grounds of mental health problems, help-seeking and of adult safeguarding in this context.
A team of service user and survivor researchers has conducted interviews with a diverse sample of 23 participants across England who volunteered to discuss their experiences of mental-health related abuse, help-seeking, protection and prevention in face-to-face interviews.
Implications of the interview findings for practice have been discussed in focus groups with mental health and adult safeguarding stakeholders, including those mentioned by interview participants. The aim of the exploration is to identify and inform person-centred practice and safeguarding responses to targeted violence and hostility experienced by mental health service users.
Twitter will be used to gather a broad range of responses to the findings via two facilitated @MHChat sessions (the first chat was held on 7th of December 2016 and a second chat is scheduled for 7 June 2017.
A final ‘sense-making and action-planning’ event will be held with all stakeholders at the end of the project in Autumn 2017.
The research is user-led in its design, and utilises a co-productive approach to findings interpretation, implementation and in developing outputs. In terms of applied knowledge, the aim is to promote user-led discussion and awareness of a particular aspect of mental health service user experience among adult safeguarding and mental health stakeholders.
Look forward to your views and experiences @MHChat discussing “Responding to service user experiences of mental health related hate crime, neglect, violence or abuse”; Wednesday, 7 June, 8:00 PM BST / 3:00 PM EDT / 12:00 Noon PDT @MHChat #MHChat
For further details please see the participants information sheet below:
Keeping control: Exploring mental health service user perspectives on targeted violence and hostility in the context of adult safeguarding’
PARTICIPANT INFORMATION SHEET
- Study title
Keeping control: Exploring mental health service user perspectives on targeted violence and hostility in the context of adult safeguarding’
You are being invited to take part in an England-wide research study of the experiences of people who have experienced hate crime, violence, neglect or other forms of abuse due to their mental health difficulties, and how to respond to those experiences. This user-led, co-produced study is being led by Dr Sarah Carr, Associate Professor of Mental Health Research, Middlesex University London, in conjunction with @MHChat. It is funded by the National Institute for Health Research (NIHR) School for Social Care Research (SSCR).
Before you decide it is important that you understand why the research is being carried out and what it will involve. Please take time to read the following information carefully and discuss it with others if you wish. Ask us if there is anything that is not clear or if you would like more information. It is important therefore, that you take time to decide whether or not you wish to take part.
- What is the purpose of the study?
This study has two main objectives:
- Firstly, to explore mental health service user perspectives and concepts of abuse relating to targeted violence and hostility on the grounds of their mental health problem, and to examine how mental health service users approach protection and prevention.
- Secondly, to begin to explore aspects of help-seeking, resilience, protection and prevention with people with mental health problems to provide a basis for taking forward investigations into how agencies involved in adult safeguarding could potentially address mental health related targeted violence and hostility against people mental health problems
- Do I have to take part?
Taking part in this research in entirely voluntary, therefore, it is up to you to decide whether or not to take part. If you do decide to take part you will be given this information sheet to keep and your tweets between 5 and 14 December (inclusive) containing @MHChat or #MHChat will be considered for this study. However, you can decide to withdraw and inform us at any time that you do not wish your tweets to be considered for this study.
- What do I have to do?
If you decide to participate in this study you only have to participate in a twitter chat @MHChat at 8pm BST / 3pm EDT on 7 June 2017.
- What are the possible disadvantages and risks of taking part?
There are no significant risks.
- What are the possible benefits of taking part?
Respect for dignity, integrity and human rights of people who experience mental health difficulties is important and it is essential that they receive effective safeguarding and person-centred services. By participating in this study you contribute to promoting greater respect, dignity and integrity for people who experience mental health difficulties. You will also help raise service standards and contribute to better person-centred safeguarding and mental health services.
- Will my taking part in this study be kept confidential?
To preserve the confidentiality of participants any tweets considered for this study will be fully anonymised. Also we will first contact you and seek your permission and consent before quoting any of your tweets in this study.
Therefore, your tweets and contributions to this study will remain completely anonymous, and all data will be stored, analysed and reported in compliance with the Data Protection Act.
- What will happen to the results of the research study?
The results of the study will be written up in a research report and will be published in high impact peer reviewed journals and books and/or presented at conferences. All reports and publications arising from the study will be in such a format that no one will be able to identify you.
- Who has reviewed the study?
This research project has been reviewed and approved by the Research Ethics Committee at the Middlesex University.
- Contact for further information
If you have any questions regarding this project please contact Claudia Megele (Social Media and Digital Research Lead for this project) at Info@MHChat.com
You can find out more out about the research and watch the service user research team discuss their perspectives on the research here.
Thank you for taking part in this study. Your participation means a lot and contributes to better understanding and improving the protection and services for people who experience mental health difficulties.