Questions for user-led NIHR research @MHChat

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Keeping Control: Exploring mental health service user perspectives on targeted violence and hostility in the context of adult safeguarding

In collaboration with Middlesex University and in line with our objective of promoting greater understanding of mental health and challenging the discrimination and stigma associated with mental health difficulties, we are participating in a user-led research project funded by the UK National Institute of Health Research (NIHR) School for Social Care Research (SSCR) that is investigating the experiences of violence, hostility, hate crime, neglect, or other forms of abuse against people experiencing mental health difficulties in order to inform adult safeguarding practice in England.

In specific, in today’s chat (7 June 2017) we will focus on the following questions @MHChat

  1. Are there inequalities in safeguarding of people with mental ill health when dealing with mental health services?
  2. Do people experiencing mental ill health experience abuse, aggression or neglect in mental health community & inpatient services?
  3. How does the fragmentation of services and inter-agency and inter-professional communication influence service users and service delivery?
  4. Is there a sense of collective responsibility in multi-agency, multi-professional or community interventions?
  5. How responsive are staff and mental health professionals in their roles, attitudes & responsibilities? Does this meet the needs of service users?
  6. Are mental health staff confident & empowered in their role? Do they feel they can be assertive to meet service users’ needs?
  7. In your view, is poor service or practice identified, reported, escalated and dealt with effectively?
  8. How is bad practice dealt with? & are whistle blowers supported and protected adequately?
  9. What is the quality of services and professional engagement with service users? Do people receive the support they need?
  10. What is needed to enhance services and meet the needs of people who experience mental health difficulties?
  11. What is the role of independent advocacy? & Is it helpful?
  12. How can we enhance adult safeguarding for people with mental ill health and in mental health inpatient settings?
  13. To what extent is mental health included in inter-agency adult safeguarding panels? How can this be improved?
  14. Are there inequalities compared to other types of adult safeguarding, for people who experience #MH difficulties
  15. How do people who experience Mental Health difficulty actually respond & manage or cope with such abuse & neglect?
  16. Is there a better way? How can people who experience mental ill health better respond & manage such abuse & neglect?
  17. What is needed? How can Mental Health services offer better & more person-centred protection & adult safeguarding?

As always we look forward to your views, experiences and insights in relation to experiences of violence, abuse, or neglect toward people who experience mental health difficulties. This research is a user-led research that is aimed at informing and improving mental health services and enhancing person-centred adult safeguarding for people who experience mental health difficulties.

This is a great opportunity to share and express your views on how adult safeguarding and other agencies, individuals or organisations need to respond to neglect, abuse, violence and hostility due to a person’s mental health difficulties and @MHChat we will do our best to include as many stories, ideas, experiences and tweets as possible and highlight your voice and views in this research. However, please note the following:

  1. @MHChat chats are led and guided by people with lived experience of mental health challenges (this includes professionals who have lived experience of mental health difficulties).
  2. The main objective of this user-led research project is to understand and raise awareness of the various experiences of violence and hostility against people experiencing mental health difficulties. This can help improve organisations’ and professionals’ understanding of the challenges faced by people experiencing mental ill health. We are particularly interested in personalising adult safeguarding and to help professionals and organisations better safeguard people experiencing mental health difficulties.
  3. To ensure respect for @MHChat participants’ and community members’ privacy, any tweets used from the abovementioned chat (scheduled on 7 June 2017) will be anonymized so they are not retraceable to the original person;
  4. If we decide to use any direct quotes from any participants, @MHChat will contact that specific participant, through their Twitter account, to ask their permission and consent before using any direct quotes from them.
  5. Only tweets between 5 and 14 June 2017 and relating to the above chat and addressed to @MHChat or containing the hashtag #MHChat will be collected for this project. All other tweets will NOT be included in this project.
  6. If your tweets are private and @MHChat is unable to see your tweets but you would like to participating in this research, please DM (Direct Message) to let us know that you have tweeted us regarding this research.
  7. If you prefer your tweets not to be included or considered for this project, please let us know via one of the following:
    1. Tweet @MHChat stating that you do not wish to participate in the research project;
    2. DM @MHChat stating that you do not wish to participate in the research project;
    3. Email @MHChat at info at stating that you do not wish to participate in the research project;
  8. Please note other tweets @MHChat are not used for this project.
  9. This is an important opportunity to raise greater awareness of experiences of violence and hostility toward people who experience mental ill health and therefore, @MHChat is participating and supporting this research. However, if you would like to take part in the chat but don’t want your views to be included in this research just let us know as stated above and we will not include any of your tweets in this research.

This user-led research project has received ethical approval from the ethics board of the Middlesex University and seeks to address an important gap in research and practice knowledge relating to ‘disability hate crime’, targeted violence and hostility against people experiencing mental health difficulties and adult safeguarding.

The Care Act 2014 ‘Making Safeguarding Personal’ reforms in the U.K. explicitly state that “safeguarding is everybody’s business”. This study seeks to understand how adult mental health service user experiences can inform personalising ad improving safeguarding and the practice focus on resilience and prevention.

We want your help to make recommendations for adult safeguarding and how systems such as mental health services, the police and housing can respond better to people experiencing mental health difficulties.

For further details or if you have any questions regarding this research please contact @MHChat and see the full description of this user-led research.

Look forward to your views and experiences @MHChat discussing “Responding to service user experiences of mental health related hate crime, neglect, violence or abuse”; Wednesday, 7 June 8:00 PM GMT / 3:00 PM EST / 12:00 Noon PST @MHChat #MHChat

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